CHITOWN MAN SEEKS FUNDS FOR SURGERY FOR RARE BONE DISORDER

Tafara Chibanda

A CHITUNGWIZA man, 28, living with a condition called osteogenesis imperfecta, is desperately seeking financial assistance to undergo life-changing surgery in India. 

Tinotenda Sean Madzambatira, who lives in Unit A, has suffered numerous bone fractures throughout his life due to this weakening disorder. He is seeking US$5000 to US$10000 for the cost of travel, treatment and rehabilitation.

“Last year, in February, I fell and my leg was put in a cast, but it never healed properly. My bones were not intact,” said Madzambatire.

Osteogenesis imperfecta, also known as “brittle bone disease,” is a rare genetic condition that causes bones to be abnormally fragile and prone to breaking.

After months of unsuccessful treatment, doctors told Madzambatira that he would require complex orthopedic surgery, involving metal implants to stabilise his legs.

However, the procedure is expensive.

“When I was discharged, both my legs were broken, my right leg is now stiff and does not move, and my left leg has turned inward with the knee facing up,” Madzambatira said.

“I can no longer use my wheelchair or even go to the bathroom on my own. I need help from others for everything.”

Madzambatira has heard that specialist surgeons in India may be able to restore the function of his legs through a series of operations.

However, the cost of travel, treatment and rehabilitation is estimated to be over US$5000 to US$10 000, which is far beyond his means.

“I am pleading for help so I can get the surgery I need. If they can’t fix my legs, they may have to amputate and provide me with artificial limbs.

 “I just want to be able to live independently and continue earning a living,” Madzambatira said.  Those wishing to support Madzambatira’s medical journey can contact him on 0774759276 .

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